Wednesday, August 24, 2016

To my 2 year old on her first day of school

I remember the day we found out we were finally pregnant with you, we had been trying for such a long time, I couldn't help but think you were going to be a true angel sent from above. 




Weeks went by and I began to feel you inside, turning, hiccuping and growing. I remember the morning we were going to see you on that little screen at the ultrasound appointment, we could not contain our excitement. We were quickly brought to our knees when the doctor gave us the news that you had a heart defect. 




The next weeks followed with tests and more tests. We also found out that you would have an extra chromosome.

I'm sorry to say I was scared, I'm sorry to say the tears rolled down easily because I didn't know what your future would be like, I didn't know what you would be like. 

Months went by and we prepared for you to come and join us in this world. I begged and pleaded with God that he would make you healthy and perfect.

On the day you were born there was a sign on the wall with the words "Miracles happen here." 




We were so excited to meet you. Your sissy was at school and she had no idea you were coming on that very beautiful day. You came pretty fast.

God actually made our dreams come true! He did answer our prayers. You were healthy. A team from NICU checked you out for about five minutes and they said your heart was good and you wouldn't need surgery for a few months. And guess what? You were perfect, you were perfect to us! 

When I think of the day we finally met you, I remember how tiny you were. That day, I promised you that I would always love you, protect you and guide you, and I would teach the world about you. Because my biggest fear was that this world wasn't ready for you. 




I never thought your first day of school would come so quick, now that it's only a couple of weeks away, I don't know if my heart can handle it.  

You will be meeting new people and I have to trust the world to take care of you. I have to trust that you will be safe, that you will be cared for and treated with love and respect. That this world will look at who you are and not diss your ability. That this world will see all you are capable of and build your wings with gentle loving care, the way we have. That you will be given the opportunity to thrive in your own unique way. 

I hope that the couple of years that you've been with us I have prepared you for this big stepping stone in your life. If anything, I know we've all shown you how much we adore you, how we treasure who you are and that we love you for being you! 

Because you are living the beauty of Down Syndrome, I take comfort in sending you to school. I know that you need more time to learn, that you require more help... And though I want you with me always, because I don't know if the world is ready for you, I do this for you, for you to be able to fly, to be able to succeed, to be able to communicate, and for you to show the world that you can do anything you dream of with a little bit of extra help. 

I know I will be a mess on your first day of school, your very first day without me. My hope is that your teacher can see the potential I see in you, your determination, your silliness, your passion for life, your yearning to learn, your sweet soul and your loving heart.  That she will guide you and teach you, because I know it takes a village.

I pray one day you may be independent and lead a beautiful life the way we have imagined for you.  I know you will shine bright like the biggest star and the sky is the limit! 




May your sweet Guardian angel protect you through this new journey my precious one. We believe in you more than you will ever know. You take a huge piece of my heart everywhere you go. Mama loves you to heaven and back times infinity and beyond, forever. 

Mommy

Friday, August 5, 2016

Happy Heartiversary to my little Hero

As I lay in bed tonight, I'm so tired, in pain and done with today! I had a long day filled with dentist appointments. 

Tomorrow we celebrate Jordan Grace BIG!!! It is her two year heartiversary. She's my hero! Definitely braver than I will ever be! Today proved that! 

I Remember that day like it was yesterday, I can literally take myself to the very minute we arrived at the hospital. But I don't always allow myself to go back to that place. It was so incredibly painful. Hands down the worst day of my life. 


I felt as though my heart would leave my body, I was numb all over, tears would flow like waterfalls, easily and freely. I didn't like that feeling. My body would tremble. It was hard to see past handing her over to the surgical team and waiting. 


Waiting, waiting, waiting, for what seemed like eternity...I cried and prayed and cried and prayed with my family. Thank God for my family! They kept me sane. My two year old niece at the time told me everything would be ok. 

I wanted to believe her, but thinking about Dr. Ross literally opening my baby's precious little heart was enough for me to plead and beg my God to be there in the operating room helping and guiding the miracle that took place. 

I don't let myself go to that dark place much, but when I do, like tonight, I fear I may collapse of the horrible pain and fear I felt in those long hours. 


Jordan Grace is my hero for so many reasons, she's the bravest little person I know. She's the miracle we never knew we wanted. She has completed our sweet family and made us thank our Lord each and every single day. We are truly and madly and deeply in love with her.  


As she slumbers tonight in her crib I once again thank my lucky stars. I can't believe God trusted me this much to send me my two angels from above. I'm a blessed mama ❤️